Young Canadians providing care
By Amanda Bleakney
- One in four young Canadians provided care to a family member or friend
- Young caregivers most often caring for their grandparents
- Age-related needs most common reason for providing care
- Housework and transportation most common helping activities
- One-third of young caregivers spent 2 to 4 hours a week on caregiving
- Most young caregivers had been providing care for 1 to 3 years
- Education adversely affected for one in five caregivers enrolled in school
- One-third of young caregivers report being worried, anxious and tired
- Data source
In recent years, there has been a growing interest in young adults who contribute to the well-being of those with long-term health conditions, disabilities or age-related problems (Charles et al. 2012). These young Canadians assist family and friends with the tasks of daily living, transportation, home maintenance, and other caregiving activities.
While they share many similarities with their older counterparts, young caregivers, defined here as those aged 15 to 29 years, are a unique group. They are at an important stage of physical, emotional, and mental development, where most have not yet solidified life plans and choices. Consequently, taking on the role as caregiver could interfere with life pursuits. Education and career development may be postponed, and delays may be experienced in leaving the family home, getting married, and having children (Levine et al. 2005).Note 1
Using data from the 2012 General Social Survey (GSS) on Caregiving and Care Receiving, this report presents the number of young caregivers in Canada, the relationship of these caregivers to the care recipient, the intensity of caregiving, and the types of care provided. The report concludes to highlight the impact of caregiving duties on young caregivers, examining the possible consequences on education, paid work and mental and physical health.
In 2012, an estimated 1.9 million young Canadians, or 27% of the population aged 15 to 29, provided some form of care to a family member or friend with a long-term health condition, disability, or aging needs. This care was provided in the 12 months preceding the survey. Canadians between the ages of 15 and 24 were equally as likely as those aged 25 to 29 to have caregiving responsibilities.
Rates of caregiving were consistently higher among young women. In total, an estimated 31% of women under the age of 30 provided care, compared to 24% of young men.
Providing care was not always restricted to helping one family member, friend, or neighbour. About one in four (28%) young caregivers provided care to two people, while 19% provided care to three or more family members or friends.
Ailing grandparents were the most frequent recipients of young caregivers’ help. In 2012, four in ten young caregivers reported primarily helping their grandparent over the past year. Most times, grandmothers, rather than grandfathers, were the recipients of this care (75% versus 25%). This likely reflects the greater life expectancies among women, and their corresponding higher representation within the senior population (Milan and Vézina 2011).
Parents were the next most common group, with 27% of young caregivers looking after the needs of their parent. While less common, 14% of young caregivers reported helping friends or neighbours, and 11% had provided some form of help to a sibling or extended family member.
There were some variations in the types of people helped, based on the age of the caregiver. In particular, providing care to a grandparent was more commonly reported by caregivers aged 15 to 24 years than those in their mid- to late-twenties (47% and 31%). The opposite was true for parental care, where caregivers in their mid- to late-twenties were more likely than their younger counterparts to provide care to a parent (32% and 24%).
Young caregivers were asked about the type of health problem requiring care. Around one-third (29%) were helping a family member, friend or neighbour because of age-related needs, making it the most common reason for providing care. Next was cancer at 10%, followed by cardio-vascular problems and mental illness, both at 8%.
Not unexpectedly, aging needs or frailty were by far the most often reported by those caring for grandparents (55%). Cancer and dementia were the next most common, each reported by about 8% of young people caring for a grandparent. Reasons for providing care to parents were more varied. Cardio-vascular problems (15%), cancer (14%), and accident-related injuries (11%) topped the list of reasons cited by young people caring for a parent.
The types of help provided by young caregivers were similar to caregivers overall (Sinha 2013). Caregivers under 30 most often helped with tasks inside the home, such as meal preparation and cleaning (66%), transportation to and from appointments or shopping (66%), and house maintenance or outdoor work (60%).Note 2
Young women and men somewhat differed in the types of tasks performed (Chart 1). Young women were more likely than their male counterparts to help with housework, personal care, and scheduling and coordinating appointments, whereas young men more often provided assistance with house maintenance and outdoor work. These findings are consistent with the overall picture for caregivers.
The intensity of caregiving may vary from less than one hour per week to full-time care. Most commonly, young caregivers spent 2 to 4 hours a week caring for a family member or friend, with 32% reporting this weekly commitment (Chart 2). Another 28% spent one hour or less a week on caregiving activities. While full-time care was relatively rare, 5% of young caregivers provided care for 30 or more hours a week.
The weekly hours of care somewhat varied depending on the young person’s relationship to the care recipient. Caring for a grandparent was characterized by the lowest intensity of family care, despite being the most common. Young caregivers spent a median of 2 hours per week caring for a grandparent, compared to a median of 3 hours overall. Taking care of a parent required around 5 hours of help every week.
Variations in intensity may be explained by a number of factors, such as assistance from other caregivers and the distance between the caregiver and care recipient’s homes. For instance, 35% of young people caring for a parent identified themselves as the primary caregiver. In contrast, 8% caring for their grandparent reported that they were their primary caregiver.
There were no differences in median weekly hours of care based on the young caregiver’s age or sex.
Along with the weekly commitment to caregiving responsibilities, the intensity of care can also be measured by the duration of care. In other words, how long the caregiver has been providing care. Approximately half (47%) of young caregivers reported assisting their primary caregiver for 1 to 3 years, while 38% had been caregiving for 4 years or more. The latter was more often the case among caregivers aged 25 to 29, with 45% providing care for this length of time. A minority of young caregivers (15%) reported providing assistance for less than a year.
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Young caregivers most prominent in Saskatchewan and Ontario
Young people’s involvement in caregiving varied considerably by province. Consistent with the provincial rates of caregiving overall, the highest rates were recorded in Saskatchewan and Ontario, where rates were above the national average of 27% (Chart 3). The lowest rates were observed in Newfoundland and Labrador (20%) and Quebec (22%), while the remaining provinces were on par with the rate for Canada.
There are a number of factors that may contribute to provincial variations in caregiving among young Canadians, including differences in living arrangements, health conditions, and interprovincial migration of young Canadians across provinces.
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Most caregivers under the age of 30 were either going to school or working at a paid job or business, with an estimated 47% reporting their main activity as schooling and 42% as paid work. The engagement in these two areas may be adversely affected by caregiving responsibilities.Note 3
Overall, one in five young caregivers enrolled in school reported that their studies had been affected as a result of their caregiving responsibilities. This could mean anything from missing deadlines, not attending classes, having less time to study, being distracted or experiencing any other negative outcomes related to their educational experience.
These consequences on schooling were most often reported by young caregivers spending at least 10 hours per week on caregiving activities. Over one-third (37%) of these young caregivers reported that their caregiving responsibilities had a negative impact on their education, compared to 14% of caregivers spending less than ten hours a week on care. A few young caregivers (7%) reported that they could not attend school altogether, due to their caregiving responsibilities. They either postponed plans indefinitely or to a later date.
For young caregivers in the paid workforce,Note 4 the impact on their caregiving responsibilities was also felt. Over one-third (36%) of young caregivers arrived to work late, left early or took time off because of their caregiving responsibilities. There was no significant difference based on the intensity of care. A further 12% of young caregivers said that they had to reduce their weekly hours of work because of their caregiving duties.
Providing care to a family member or friend can be a genuinely rewarding experience. An overwhelming proportion (85%) believed that their relationship with the care recipient had strengthened during the caregiving period, compared to 5% that reported that their relationship had weakened during that time.
Furthermore, most young caregivers found their caregiving experiences either very rewarding (78%) or somewhat rewarding (19%). This may be related to the fact that nearly three in four young caregivers felt they had a choice in taking on their caregiving responsibilities.
Although there are positive outcomes associated with providing care to a family member or friend, caregiving duties may take a toll on a caregiver’s emotional, mental, and physical health. Worry and anxiety were the single most common feelings reported by young caregivers (39%), followed by fatigue (36%), feeling overwhelmed (28%), and feeling short-tempered or irritable (26%).
These negative emotional, mental, and physical impacts of caregiving were typically higher for young caregivers providing 10 or more hours of care per week. Compared to other young caregivers, these higher-intensity caregivers felt more tired (58% vs. 27%), worried or anxious (54% vs. 32%), overwhelmed (47% vs. 20%), and sleep-deprived (41% vs. 14%).
An estimated 1.9 million Canadians under the age of 30 provided some form of assistance to an ailing family member or friend, most often a grandparent or parent. The weekly commitment varied, with young caregivers providing a median of 3 hours of care per week. Help with cooking and cleaning topped the list of helping activities, along with providing transportation and helping with home maintenance and outdoor work.
Caregiving had a positive impact on most young Canadians, though some reported negative consequences on their schooling or paid work, as a result of their caregiving responsibilities. The impact on work was magnified among those who provided longer hours of care.
This report is based on Cycle 26 of the General Social Survey (GSS) on “Caregiving and Care Receiving”. The objectives of this survey are to provide estimates of caregiving and care receiving in Canada and the characteristics of care receivers and caregivers.
The target population included all persons 15 years and older living in the ten provinces of Canada, excluding full-time residents of institutions. In 2012, all respondents were interviewed by telephone. Households without telephones or with only cellular phone service were excluded. Based on the most recent Residential Telephone Services Survey, conducted in 2010, these two groups combined represented approximately 14% of the target population. This proportion may be higher for 2012 due to the likely increase in cellular-only households. Survey estimates were adjusted (weighted) to represent all persons in the target population, including those without telephones. Once a household was contacted, an individual 15 years or older was randomly selected to respond to the survey. The sample size in 2012 was 23,093 respondents.
Data collection took place from March 2012 to January 2013 inclusively. Computer assisted telephone interviewing (CATI) was used to collect data. Respondents were interviewed in the official language of their choice. Proxy interviews were permitted. These represented 4% of all interviews.
The overall response rate was 65.7%. Types of non-response included respondents who refused to participate, could not be reached, or could not speak English or French. Survey estimates were weighted to represent the non-institutionalized Canadian population aged 15 years or over.
As with any household survey, there are some data limitations. The results are based on a sample and are therefore subject to sampling error. Somewhat different results might have been obtained if the entire population had been surveyed. This article uses the coefficient of variation (CV) as a measure of the sampling error. An estimate that has a CV between 16.6 and 33.3 should be used with caution and the symbol ‘E’ is referenced with the estimate. Where descriptive statistics and cross-tabular analysis were used, statistically significant differences were determined based on a p value of 5%.
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